Welcome to the MY DIABETES Study!

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The MY DIABETES study was set up in 2013 to investigate different types of diabetes in people diagnosed at young age (before the age of 30 years).

MY DIABETES stands for MODY in young-onset diabetes from different ethnicities

We aimed to identify a genetic form of diabetes that is frequently misdiagnosed called, maturity onset diabetes of the young (MODY).

So far we’ve recruited over 1000 individuals and we’re still recruiting.

MY DIABETES

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We continue to recruit south Asian and African-Caribbean people with diabetes diagnosed under the age of 30 years.

If you think you may be eligible, please contact us.

You may be eligible if...

  •  Diagnosed with any type of diabetes on the basi of fasting glucose and/or oral glucose tolerance test and/or HbA1c as per WHO criteria.
  •  Aged below 30 years at diagnosis
  •  South Asian ancestry - defined as self-reported ancestry and at least 2 grandparents from the Indian Subcontinent (India, Pakistan, Bangladesh or Sri Lanka).
  •  African and Caribbean ancestry - defined as self-reported ancestry and at least 2 grandparents from the African continent or the Caribbean.

What's involved?

ADULTS

Volunteers will be asked to attend after an overnight fast. During the visit the Research Team will run through the study participant information sheet, answer any questions and, if the participant is happy, document informed consent. The participant will be asked to provide a urine and a blood sample, undergo a general clinical examination and provide a medical history. At the end of the visit usual mediations will be taken and the participant will be sent free to go home and this concludes participation.

CHILDREN

Children participating in the study will attend the research facility with their parent or guardian. They do not need to attend fasting. We’ll ask all of you about the type of diabetes your child has and their treatment. We’ll also ask for a urine test. A small volume of blood will be collected by trained staff for analysis.

What happens to your samples?

The samples will be analysed for antibody positivity, C-peptide levels and other biochemical parameters. Participants will be informed of results via a standardised letter, unless they are antibody negative in which case they will undergo genetic screening for monogenic diabetes. If positive, they will then be informed by the clinical research fellow and given the opportunity to discuss them with a Diabetologist. Please note that genetic testing results can take some time to be disseminated.

Recruiting Hospital Sites

Barts

Birmingham

Birmingham Heartlands

Blackburn

Bradford

Bristol

Calderdale and Huddersfield

Central Middlesex

Chorley District

City

Coventry

Ealing

Guy's and St Thomas

Hillingdon

Imperial College

Kings College

Lewisham

Luton and Dunstable

Manchester University

Newham

Northwick Park

Pinderfields

Royal Preston

Russels Hall

Sandwell

Sheffield

St George's

University College Hospital

Walsall Manor

Warwick

West Middlesex

Wolverhampton

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