@article{Rossini-Vilchez:2026:10.1002/alz.71581,
author = {Rossini-Vilchez, D and Tateishi-Serruto, FJ and Butler, C and Cuba-Fuentes, MS and Perez-Leon, S and Lúcar-Flores, M and Almeida-Huanca, G and Olaya-Silva, LC and Miranda, JJ and Cardenas, MK and Tudela, JCV and Bernabe-Ortiz, A and Calvo, RA and Diez-Canseco, F and Landeiro, FT and Moore, G and White, L and Whiteley, W and Lazo-Porras, M and Hawkins, J and IMPACT, Salud Research Group},
doi = {10.1002/alz.71581},
journal = {Alzheimers Dement},
title = {The patient journey for people with dementia and their carers in Peru: From first symptoms to diagnosis and treatment.},
url = {http://dx.doi.org/10.1002/alz.71581},
volume = {22},
year = {2026}
}

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TY  - JOUR
AB  - INTRODUCTION: We explored how people with dementia (PwD) and their carers navigate Peru's health system for diagnosis and treatment. METHODS: We interviewed PwD (n = 4), carers (n = 18), and healthcare workers (n = 17) from four sites. We developed a patient journey map using thematic analysis and participant validation. RESULTS: Three journey stages emerged. Pre-diagnosis: Families seek care across different sub-health systems and facilities 2-4 years after symptom onset. DIAGNOSIS: Specialist consultation is sought in major cities and diagnosis occurs in hospitals based on clinical presentation. Continuity of care: Care focuses on controlling behavioral and psychological symptoms, with limited access to dementia-specific drugs and non-pharmacological interventions, and heavy reliance on carers' resources. Community mental health centers (CMHCs) are preferred facilities due to geographical and specialist accessibility and perceived care quality. DISCUSSION: Without a formal entry point to dementia care, families navigate fragmented pathways, whereas CMHCs emerge as facilities with adequate care procedures for PwD.
AU  - Rossini-Vilchez,D
AU  - Tateishi-Serruto,FJ
AU  - Butler,C
AU  - Cuba-Fuentes,MS
AU  - Perez-Leon,S
AU  - Lúcar-Flores,M
AU  - Almeida-Huanca,G
AU  - Olaya-Silva,LC
AU  - Miranda,JJ
AU  - Cardenas,MK
AU  - Tudela,JCV
AU  - Bernabe-Ortiz,A
AU  - Calvo,RA
AU  - Diez-Canseco,F
AU  - Landeiro,FT
AU  - Moore,G
AU  - White,L
AU  - Whiteley,W
AU  - Lazo-Porras,M
AU  - Hawkins,J
AU  - IMPACT,Salud Research Group
DO  - 10.1002/alz.71581
PY  - 2026///
TI  - The patient journey for people with dementia and their carers in Peru: From first symptoms to diagnosis and treatment.
T2  - Alzheimers Dement
UR  - http://dx.doi.org/10.1002/alz.71581
UR  - https://www.ncbi.nlm.nih.gov/pubmed/42427168
VL  - 22
ER  - 

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